A Dad’s Perspective: Learning My Son Has Albinism

Editor’s note: September is Albinism Awareness Month. In effort to increase awareness of albinism and subsequent low vision in children, APH FamilyConnect shares a dad’s story of learning his young son has albinism. A Dad’s Perspective: Learning My Son Has Albinism Benjamin was born in November 2017. He was fair-skinned and blonde and looked exactly … Continued

Behind the Scenes: Mom Creates CVI-Friendly YouTube Videos

Editor’s note: Alissa DeSousa shares memories of her son receiving multiple medical diagnoses, both in utero and in early childhood, including cerebral/ cortical visual impairment (CVI). She also shares how she recognized a need for CVI-friendly videos and proceeded to meet the need. Behind the Scenes: Mom Creates CVI-Friendly YouTube Videos When my pregnancy was … Continued

Transitions: From Self-Conscious of Blindness to Self-Confident and Successful: Meet Gena Harper  

Editor’s Note: Parents of children and young adults who are blind or low vision can take note of Gena Harper’s transformation from a young person who was self-conscious of blindness to an adult who is self-confident and successful. It is common for young people to desperately want to fit in with their peers. For this … Continued

Optic Nerve Hypoplasia, Part 3: Instructional Strategies  

If your child has been diagnosed with Optic Nerve Hypoplasia (ONH), you are not alone! According to Dr. Borchert for The MAGIC Foundation, Optic nerve hypoplasia (ONH) is the leading cause of blindness in infants and children.   Joanna Mathewson recalled her young daughter’s diagnosis of ONH in Optic Nerve Hypoplasia, Part 1: Joanna and Chrissa’s … Continued

An Autobiography: Helping Your Child Write and Share His Story Which Includes a Vision Impairment

We all have a story to tell. Your heritage and culture, family and friends, home and school and work environments, interests, habits, and choices, and your experiences shape your character—the character of your story, that is. The same is true for your child who is blind or visually impaired.  Crafting the story  Wouldn’t it be … Continued

Optic Nerve Hypoplasia, Part 1: Joanna and Chrissa’s Journey

If your child has been diagnosed with Optic Nerve Hypoplasia (ONH), you are not alone! According to Dr. Borchert for The MAGIC Foundation, Optic nerve hypoplasia (ONH) is the leading cause of blindness in infants and children.   Let’s look at a brief summary of ONH and listen to a mom share her story of her … Continued

Resources on Cortical Vision Impairment (CVI) in Children

Parents and family members of children with cerebral visual impairment, a brain-based visual processing disorder, are far from alone. According to the Boston Children’s Hospital, cerebral/ cortical visual impairment (CVI) is the most common cause of permanent vision loss in children.Despite its prevalence, it isn’t widely understood. Advocating for Your Child Because CVI research is … Continued

Preparing Your Child Who is Blind or Visually Impaired for Kindergarten

Such a whirlwind of bittersweet emotions—kindergarten is approaching! It’s hard to believe how quickly the years have passed, isn’t it? Your little one went from complete dependence on you (with 100% baby adorableness) to making strides toward independence (with 100% “big kid” adorableness). Thankfully your child’s absolute preciousness hasn’t changed, but their level of autonomy has. So, let’s take a look at how you can be preparing your … Continued

Are You a Parent Wondering If You Should Learn Braille? Here Are Five Reasons to Consider Doing So

Since learning of your child’s visual impairment, I am sure there have been millions of questions running through your head. How is he going to play? How is she going to learn how to walk? How is he going to learn in school? Will she be able to live independently? Who is going to teach … Continued