Pushing Limits and Stepping Back

Eddie wakes up everyday asking what is going to happen next. He likes a schedule, prefers to stick to it, and adding something new can make him uneasy. Children who are blind can be unsure about new experiences. Being unable to predict what will be expected and unsure if they will be successful can be … Continued

The Importance of Relationships

We know friendships build self-esteem and offer a sense of belonging that can be hard to find. There are actually additional benefits that we cannot ignore for our kids who are blind and may have additional disabilities. I know it’s hard to imagine, but their relationships with kids may also be the key to employment. … Continued

Gift-Giving Reflection

Yep, I know it’s hard to believe, but the season for gifts is quickly approaching. Every year, we struggle with what to get Eddie for the holidays and so does everyone else. It’s hard to find the perfect gift, but by reflecting on some "winners," I’m hoping it will help with the selection process this … Continued

The Perfect Day

I have written many times about the benefit of recreation for our son, Eddie, and for kids like him. I’ve talked about exposure to activities so he can simply learn how to have fun. Recently, we went on a family bike ride with our close friends, and the benefits were even more than we expected. … Continued

Advocacy Without Apology

As a parent of a child who is blind with additional disabilities, I feel like apologizing a lot. I’m telling strangers "I’m sorry" because my son might touch them or their things in passing. I might apologize if he calls out or sings loudly in quiet settings. I might even apologize to family and friends … Continued

Proximity Does Not Equal Participation

Eddie was able to briefly attend a camp for kids who are blind this summer. The camp is meant to teach independence, recreation, social skills, and other parts of the expanded core curriculum, which is specific to children who are blind or visually impaired. Although his involvement was limited due to some health factors, it … Continued