You Can Touch the Elf on the Shelf: A Letter from Santa Claus

Editor’s note: Santa gives permission to children who are blind or low vision to touch their “Elf on the Shelf.” We hope you utilize this updated post from parent Holly Bonner of of Blind Motherhood to make the holidays meaningful and accessible for your child! If You Are Blind or Low Vision, You Can Touch The Elf … Continued

A Dad’s Perspective: Learning My Son Has Albinism

Editor’s note: September is Albinism Awareness Month. In effort to increase awareness of albinism and subsequent low vision in children, APH FamilyConnect shares a dad’s story of learning his young son has albinism. A Dad’s Perspective: Learning My Son Has Albinism Benjamin was born in November 2017. He was fair-skinned and blonde and looked exactly … Continued

InfantSEE Offers No-Cost Vision Assessments for Babies

Most children get a basic vision screening in elementary school. But the founders of InfantSEE® realized that’s just not early enough, or thorough enough, to identify some eye conditions that can impact a child’s development and learning ability. Glen Steele, O.D., FCOVD, FAAO, an optometrist based in Tennessee, co-founded InfantSEE with the late W. David … Continued

Making Stories Sparkle! An Invitation to an Interactive Story Time 

Editor’s note: You’re invited to a virtual Story Time Show inclusive of your child with complex learning needs. The Sparkly Story Time Show: Marvin’s Italian Adventure with Gwyn McCormack will be presented on Tuesdays, August 16, 23, 30, and September 6, 13, 2022. For families registered with their state DeafBlind Project, please register by July … Continued

Low-Vision Assessments and Services: The Earlier Your Child Starts, The Better

Perhaps you’ve noticed your young child is having trouble reading, even though they’ve started building a vocabulary. Maybe a teacher says your teen is having problems seeing the blackboard from an assigned seat, or isn’t meeting their full potential working online. Or it could be that you take your child to the family eye doctor before they … Continued

Resources on Cortical Vision Impairment (CVI) in Children

Parents and family members of children with cerebral visual impairment, a brain-based visual processing disorder, are far from alone. According to the Boston Children’s Hospital, cerebral/ cortical visual impairment (CVI) is the most common cause of permanent vision loss in children.Despite its prevalence, it isn’t widely understood. Advocating for Your Child Because CVI research is … Continued

Eye-Pressing in Children Who Are Blind or Visually Impaired, And an Invitation to a Needs-Assessment Survey

Does your child who is blind or visually impaired engage in prolonged eye-pressing? Perhaps you’ve noticed your child aggressively rubbing or poking their eyes with their fingers, knuckles, or fists, and you are concerned or even disturbed. You may wonder why it’s occurring, whether it’s acceptable, and how to address it.  If this describes you, please know you are not alone!   Let’s take a look at   why … Continued

Low Vision Exam. What is it? Who Needs it?  What comes next?

Editor’s note: Join us on June 15, 2021, @ 12:30 pm (EST), for the second of two webinars in which Dr. Alexis G. Malkin, OD, FAAO, and David Bradburn from HumanWare will provide an overview of assistive technology and services that help people with low vision perform everyday tasks. Using the state of Massachusetts as an example, the presenters will illustrate the needs, available services, and funding for 3 different groups, namely: … Continued

On Going Blind and Growing Up: My Journey with Low Vision

Editor’s note: At age 11, Emmet Teran was featured in the documentary film, Going Blind: Coming Out of the Dark About Vision Loss, by Joe Lovett (released in 2010 when Emmet was 13).  In this blog Emmet shares how this experience changed his life. Join Emmet and several others in the post-screening panel discussion of … Continued

Four smiling people, some wearing hats, on a beach vacation